Links

Scroll down for more - Links are listed in alphabetic sequence.

 

Links are those we are aware of from various sources.

We are only including a high-level overview from the original source.

 

If you want more information, please use the provided link.

Brain Injury Association of New York State  (BIANYS)
 

Support, educate and advocate for people impacted by brain injury

www.bianys.org

Statewide non-profit membership organization that advocates on

behalf of individuals with brain injuries and their families.

Provides education, advocacy, and community support services that lead to

improved outcomes for children and adults with brain injuries and their families.

Offers a toll-free family help line, chapters and support groups throughout the state.

BrainLine
 

Provider of information and support on Brain Injury & PTSD

www.brainline.org

National project offering authoritative information and support to anyone whose life has been affected by brain injury or PTSD: people with brain injuries, their family and friends, and the professionals who work with them.

 

BrainLine also provides military-specific information and resources on traumatic brain injury (TBI) and post-traumatic stress disorder (PTSD) to veterans, service members, and their families.

Clinical Trials

Provider of information on publicly and privately supported clinical trials

www.clinicaltrials.gov

Clinical trials are a research studies in which volunteers are assigned to a behavior, drug, procedure or product based on a plan.

 

Studies which are recruiting enrollees are listed.

Results of studies that have been completed are available.

Hope after Head Injury

Online community for

survivors, caregivers and family members

www.hopeafterheadinjury.com

You are not Alone !

Exists to provide hope, community, support, encouragement, education, and awareness for brain injury.

Imagine

A Center for Coping with Loss

www.imaginenj.org

Grief is a universal human experience, yet people often feel very alone and isolated. And even report feeling crazy.  At Imagine, children and adults discover what they are feeling is normal and that they are not alone.

 

Imagine provides free peer grief support groups for those coping with loss due to death or who are living with a family member with a life-altering illness.

Job Accommodation
Network   (JAN)

Source of free and confidential guidance on job accommodation and disability employment issues.

www.askjan.org

JAN helps everyone recognize the value and talents that qualified workers with disabilities add to the workforce. 

 

JAN provides free one-on-one practical guidance and technical assistance on job accommodation solutions, Title I of the Americans with Disabilities Act (ADA) and related legislation, as well as self-employment and entrepreneurship options.

John Kawie

Stand-Up comedian who suffered a stroke

Brain Freeze - You Tube

John wrote and has performed a solo show (“Brain Freeze”)

about his experiences during and after his stroke.

Kessler Foundation

Driver of positive change for

people with disabilities

www.kesslerfoundation.org

Research team seeks new ways to improve mobility, cognition, quality of life and

provide access to job opportunities.

 

Goal is to help people regain independence and lead full and productive lives.

Love Your Brain

Improve the quality of life of people affected by brain injury and

Raise awareness about the importance of brain health

www.loveyourbrain.com

Enable everyone affected by TBI can fully access their resilience,

connect with a compassionate community and reach their full potential.

Tri-State Advocacy

Advocates who personally faced the challenges of having a family member with a catastrophic injury

www.tristateadvocacy.com

A major obstacle faced by many is not knowing how to get needed help.

Goal is to help with the following:

Identify health insurance benefits

Evaluate eligibility for government benefits

Seek out community resources for services